Title: RESURRECTION LILY
Subtitle: THE BRCA GENE, HEREDITARY CANCER & LIFESAVING WHISPERS FROM THE GRANDMOTHER I NEVER KNEW – A MEMOIR
Author: AMY BYER SHAINMAN
Genre: MEMOIRS AND BIOGRAPHIES, NON-FICTION, HEALTH AND WELLNESS, MEDICAL CARE
Length: 291 PAGES
Publisher: ARCHWAY PUBLISHING
Received From: THE AUTHOR
Release Date: DECEMBER 3, 2018
Price: $19.99 USD
Rating: 5 OUT OF 5 STARS ⭐⭐⭐⭐⭐
Resurrection Lily shares a gene.story of inheritance and intuition, of what can surface in the body and the spirit when linked by DNA. As Amy Byer Shainman discovers she has inherited a BRCA gene mutation that puts her at high risk of developing certain cancers, she struggles to come to terms with preventively removing her breasts when she does not have a breast cancer diagnosis. Through her experience making decisions about her health, Amy becomes invigorated with purpose and establishes herself as a leading advocate for those with BRCA and other hereditary cancer syndromes, tirelessly working to educate others facing the same daunting reality.
Painting a timely and moving portrait of what it feels like to carry a BRCA gene mutation, Resurrection Lily provides firsthand insight into the patient experience. Weaved throughout Amy’s open and vulnerable story is the expertise of her doctors, education from top medical experts in cancer genetics, and whispered lifesaving guidance from her grandmother Lillian.
Before reading this memoir I had some small knowledge regarding the BRCA gene. If I had been asked before reading this book whether I felt I was fairly well informed on the subject of breast cancer and the BRCA Gene, I would have confidently said that I was. Now, upon completion of Amy Byer Shainman’s memoir, I know I was mistaken.
The reason I am including the above fact is that, I think many people will feel that they already have enough knowledge on Breast Cancer and on the BRCA Gene. I urge those of you who are thinking along those lines, to trust me and to pick up a copy of this memoir (and one for each of your friends and family members.) I guarantee that if you do, you will be grateful that you did. IT MIGHT EVEN SAVE YOUR LIFE – OR THE LIFE OF SOMEONE CLOSE TO YOU.
I do not want to misrepresent this book. It is NOT a dry, medical text full of facts, figures and survival rates. Instead, first and foremost it is the story of Amy and her family. It is a memoir, but is not JUST a memoir. Amy’s story is an interesting one and what struck me the most was the utter normality of her life before her unasked for trip into the world of Breast Cancer and gene studies. She could have been anyone. In fact, she could have been you. She could have been me.
When Amy’s sister is diagnosed with cancer, it changes Amy’s whole life. Then, her husband’s co-worker and close friend to both him and to Amy, is diagnosed with breast cancer as well.
Amy began looking into these cancers and discovered that there are some genetic components to breast cancer and especially to having the BRCA gene.
This book also contains quotes by specialists as well as short anecdotes written by other people who have had their own personal experiences with the BRCA Gene.
Because Amy is a “regular” person and not a doctor, this story, as well as the information contained within, is written in easy to understand prose and is NOT filled with technical jargon.
Amy does a fabulous job of conveying the conflicting emotions she experienced while worrying about her sister, worrying about her friend, all while making difficult decisions regarding her own medical issues. Readers will find themselves invested in the decisions. I even cried a few times.
Maya Angelou once said “When women take care of their health they become their own best friend.” I firmly believe this and reading this memoir has served to strengthen that belief even further.”
This book is all about Maya’s message which has become Amy’s mission in life. She has become the BRCA RESPONDER and is dedicated to helping other BRCA positive people to navigate through the health care system.
Simply put, this book might save your life, and because of that fact, to me, it is a “No-brainer.” You should not only want to read this book, you NEED to read this book.
ABOUT THE AUTHOR:
(Photographer: Debby Gans Photography)
Amy Byer Shainman, also known as the BRCA Responder, is a passionate patient advocate for those with BRCA and other hereditary cancer syndromes. While Angelina Jolie inherited her BRCA1 gene mutation from her mother, Amy inherited her BRCA1 gene mutation from her father. In 2010, Amy had two prophylactic surgeries to reduce her cancer risk drastically; a nipple sparing, skin-sparing mastectomy with reconstruction and oophorectomy with a hysterectomy.
Amy Byer Shainman, also known as BRCA Responder, is a patient advocate who provides support and education surrounding BRCA and other hereditary cancer syndromes. She’s the executive producer of the award-winning documentary “Pink & Blue: Colors of Hereditary Cancer” and the author of the award-winning medical memoir “Resurrection Lily: The BRCA Gene, Hereditary Cancer & Lifesaving Whispers from the Grandmother I Never Knew.” As a BRCA1 gene mutation carrier, Shainman has been featured in Cure Magazine, The Jewish Journal, and The Palm Beach Post, as well as numerous live and taped television and radio segments nationwide. As a digital ambassador for the National Society of Genetic Counselors gene pool, she is considered one of fifteen influencers who have unique perspectives and knowledge in the fields of genetics and genetic counseling. Her articles have been published in The American Journal of Managed Care, Jupiter Magazine, and Oncology Nursing News.
To learn more about this author, visit the following links:
SOME OF THE MANY RESOURCES SPECIFICALLY MENTIONED IN THIS BOOK INCLUDE:
– A Documentary DVD from PBS called IN THE FAMILY (not the Archie Bunker sitcom)
– The BE BRIGHT PINK Website
– The FACING OUR RISK EMPOWERED Website
– DR. JOHN A.P. RIMMER, FACS, FRCS, BREAST SURGEON
– DR. DAVID A. LICKSTEIN, MD, FACS, DIPLOMATE, AMERICAN BOARD OF PLASTIC SURGERY
– CENTER FOR BRCA RESEARCH HEREDITARY CANCER CLINIC
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