SMACKED – A Story of White-Collar Ambition, Addiction and Tragedy by Award-winning Journalist EILENE ZIMMERMAN Coming Soon – A Story That Will Open People’s Eyes to the fact that Addiction Effects all Socioeconomic Classes and is NOT simply a ‘Poor People Problem’ – AN IMPORTANT AND TIMELY MEMOIR THAT IS A MUST READ FOR US ALL

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Title: SMACKED

Subtitle: A STORY OF WHITE-COLLAR AMBITION, ADDICTION, AND TRAGEDY

Author: EILENE ZIMMERMAN

Genre: NON-FICTION, BIOGRAPHIES AND MEMOIRS, ADDICTION

Length: 272 PAGES

Publisher: RANDOM HOUSE

Received From: NETGALLEY

Release Date: FEBRUARY 4, 2020

ISBN: 9780525511007 (Hardcover)

Price: $27.00 USD (Hardcover)

Rating: 5 OUT OF 5 STARS ⭐⭐⭐⭐⭐

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DESCRIPTION:

A journalist pieces together the mysteries surrounding her ex-husband’s unexpected death from drug abuse while trying to rebuild a life for her family, taking readers on an intimate journey into the white-collar drug epidemic

Something was wrong with Peter. Eilene Zimmerman noticed that her ex-husband looked thin, seemed distracted, and was frequently absent from activities with their children. She thought he looked sick and needed to see a doctor, and indeed, he told her he had been diagnosed with an autoimmune disorder. Yet in many ways, Peter seemed to have it all: a beautiful house by the beach, expensive cars, and other luxuries that came with an affluent life. Eilene assumed his odd behavior was due to stress and overwork—he was a senior partner at a prominent law firm and had been working more than sixty hours a week for the last twenty years.

Although they were divorced, Eilene and Peter had been partners and friends for decades, so when she and her children were unable to reach Peter for several days, Eilene went to his house to see if he was OK.

So begins Smacked, a brilliant and moving memoir of Eilene’s shocking discovery, one that sets her on a journey to find out how a man she knew for nearly thirty years became a drug addict, hiding it so well that neither she nor anyone else in his life suspected what was happening. Eilene discovers that Peter led a secret life, one that started with pills and ended with opioids, cocaine, and methamphetamine. He was also addicted to work; the last call Peter ever made was to dial in to a conference call.

Eilene is determined to learn all she can about Peter’s hidden life, and also about drug addiction among ambitious, high-achieving professionals like him. Through extensive research and interviews, she presents a picture of drug dependence today in that moneyed, upwardly mobile world. She also embarks on a journey to re-create her life in the wake of loss, both of the person—and the relationship—that profoundly defined the woman she had become.

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ADD ON GOODREADS

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MY REVIEW:

Part memoir, part exposé, SMACKED takes readers on a journey into the white-collar world of drug and work addiction.

When most people think about the Opiod Epidemic and even addiction in general, they incorrectly assume that the people involved must come from low-income communities and/or broken homes. This book proves just how wrong that assumption is.

Author EILENE ZIMMERMAN thought she knew everything there was to know about her ex-husband. After all, just because they had ended their marriage, didn’t mean they had ended their friendship. They were committed to providing as stable an environment as possible for their two teenage children. They were in constant communication and even attended important events, such as graduations, together.

So, when neither herself, nor the children, had heard from Peter for several days, Eilene went to check on him. What she found upon entering his home permanently changed her life and the lives of her children.

As a journalist, it was not surprising that her reaction to discovering her ex-husband’s drug addiction was to do research. What was surprising is what she uncovered. To find out all the details, you need to read SMACKED.

I am impressed with the writing style and how well the author is able to convey the details, including the emotions both she and her children were experiencing.

It is often difficult for memoir writers to be brutally honest about their experiences. Often, the desire to sugarcoat certain facts is given in to. EILENE ZIMMERMAN does NOT sugarcoat any details. This makes for a much more realistic and believable tale. She articulates her anguish with heart-wrenching clarity.

The fact that Eilene had believed all of Peter’s excuses for the changes in his behaviour in hindsight can clearly be seen as being caused by addiction. However, Eilene, as with others of a high socioeconomic status, had no experience with drug addiction and as such, the idea of it had never crossed her mind.

The more Eilene researched, the more she learned and what she was uncovering shook her worldview. She knew she needed to let other people know just how prevalent addiction is in high achievers. This discovery led to her writing an article for the New York Times which in turn, led to the writing of SMACKED.

Everyone should read this book and it should be required reading for new lawyers, stock brokers, and others who occupy high stress jobs.

I rate SMACKED as 5 OUT OF 5 STARS ⭐⭐⭐⭐⭐

*** Thank you to NetGalley for providing me with a free copy of this book ***

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ABOUT THE AUTHOR:

Eilene Zimmerman has been a journalist for three decades, covering business, technology, and social issues for a wide array of national magazines and newspapers.

She was a columnist for The New York Times Sunday Business section for six years, and since 2004 has been a regular contributor to the newspaper.

In 2017, Zimmerman also began pursuing a master’s degree in social work.

She lives in New York City.

To learn more about this author, visit the following links:

OFFICIAL WEBSITE

GOODREADS

FACEBOOK – PUBLISHER

ABOUT ME WEBSITE

TWITTER – AUTHOR

TWITTER – PUBLISHER

TWITTER – PENGUIN RANDOM HOUSE

MEDIUM.COM

LINKEDIN

MUCK RACK

AMAZON

CHAPTERS

LIBRO FM AUDIOBOOKS

PUBLISHER’S WEBSITE

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“Addiction is a pervasive problem among lawyers,” says Doron Gold, a Toronto-based psychotherapist and former practising lawyer who helped develop the CBA’s online course on mental health and wellness in the legal profession.

– Obtained From THE NATIONAL MAGAZINE

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“The most important thing I want everyone to know is that addiction does not discriminate. What happened to me can easily happen to anyone of you. Guaranteed, someone close to you is struggling with mental health and/or substance abuse.”

Corey Phair

Quote Obtained From: THE POST ARTICLE FOUND HERE

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Click HERE to listen to a short interview with the Author describing her story.

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A MEDIC’S MIND by Matthew Heneghan is a memoir of his struggle with PTSD. A fascinating and compelling tale

Title: A MEDIC’S MIND

Author: MATTHEW HENEGHAN

Genre: NON-FICTION, BIOGRAPHIES AND MEMOIRS, MILITARIA, PTSD, MENTAL HEALTH, INSPIRATIONAL, CANADIAN NON-FICTION

Length: 258 PAGES

Publisher: WINTERTICKLE PRESS

Received From: THE AUTHOR

Release Date: OCTOBER 30, 2019

ISBN: 978-1-894813976

Price: $25.96 CDN

Rating: 5 OUT OF 5 STARS ⭐⭐⭐⭐⭐

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DESCRIPTION:

Matthew Heneghan weaves an intricate web that is his life, in a style all his own. Once a medic in the Canadian Forces and a paramedic in the civilian world, he has a varied and traumatic past. Facing childhood abuse, addiction, suicide ideation, incredible loss, mental illness, he finds himself left rudderless, Matthew chronicles his journey towards a better way of coping.

If you have spent time in the military, paramedicine, or just love devouring an exquisitely written tale, this book is a must-have. Learning how Matthew transitions from the stereotypical position of “hero” to becoming the hero of his own life is nothing less than inspiring.

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MY REVIEW:

“At a certain point, the very best of humans will finally break, with long-lasting implications.”

Todd McGowan, Chief Warrant Officer (Retired), Canadian Armed Forces

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Sitting on the edge of an overpass, haunted by the demons of trauma and loss, Matt is ready. Ready to end his life, and along with that would be an end to his pain and suffering. However, when an ambulance passes on the road below, he realizes that he doesn’t want the EMTs inside to be traumatized because of him. He can’t bear to be the cause of someone else’s suffering.

Thank goodness he didn’t go through with his planned suicide attempt, or A MEDIC’S MIND would not exist and that would be a terrible shame.

This book might just be the catalyst for others who are experiencing the symptoms of PTSD to seek treatment – thus saving their lives, or at the very least, helping to identify and possibly alleviate some of their symptoms.

A MEDIC’S MIND is a memoir written by an extraordinary man who has served our country and saved many lives. Although I am sure he would disagree, it is my opinion that he is the very definition of a “Hero.”

So, if he is a hero, and a distinguished retired member of the CAF (Canadian Armed Forces) then shouldn’t his life be perfect? Shouldn’t he be happy and healthy in the knowledge that without him, many more families, military and otherwise, would be mourning their losses?

You might think so, but that would be a very simplistic view of what happens inside the human brain.

I don’t believe anyone who hasn’t experienced the trauma of war has the ability to understand the emotional, physical, or psychological damage such experiences can cause.

After leaving the military, Matthew became a paramedic which further exposed him to more and more trauma. It has only been within the past few years that our society’s first responders have had their psychological health taken into account and that it has been acknowledged that PTSD is not limited only to soldiers.

Matthew Heneghan may have been a fantastic medic and EMT, but his true calling, in my opinion, is writing about his experiences. In A MEDIC’S MIND, he opens his mind and heart and lays everything bare. The bravery this takes is monumental. In a recent blog post, where he writes about the suicide of his close friend, Matthew states:

“Living with a fractured mind can be torturous. Living with a fractured mind and a broken heart… that’s torture of the rarest kind.”

Matthew, at one point in his life turned to alcohol to cope and to try to fill the pain he was feeling. He is now clean and sober and still damaged. He has learned a hard truth which he shares with the reader, that just because you kick an addiction, does not instantly mean you are “cured.” Life can, and does, kick you in the ass, but you have to hold on, even if, at times, it feels like you are only hanging on by the tips of your fingers.

I truly believe that A MEDIC’S MIND is an important memoir. This book needs to be widely read and distributed.

I have read many biographies and this one is one of the few that will stay with me for a very long time. I wholeheartedly believe A MEDIC’S MIND will become a book that anyone and everyone who wants to understand the psyche of a PTSD sufferer needs to read. This includes others suffering from trauma, their friends and families, as well as those who seek to understand and/or treat this disorder.

I rate A MEDIC’S MIND as 5 OUT OF 5 STARS ⭐⭐⭐⭐⭐ and I sincerely hope that the author continues to blog and podcast and to speak out his truth. I think he is an important advocate for informing people about PTSD and it’s ongoing effects.

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****Thank you to the Author for providing me with a free copy of his book.****
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https://www.listennotes.com/podcasts/my-therapy/episode-47-matt-heneghan-37J4KhXwHlN
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ABOUT THE AUTHOR:

Born in England, Matthew and his family emigrated to Canada when he was five years old. He is now thirty-six years old. Everything written in his book and on his blog are true.

Matthew was an army medic for 6 years and after his time in the army was finished, he became a paramedic for a busy city ambulance service. Most of what he writes comes from these experiences. The Good, the Bad and the Tragic.

He was diagnosed with PTSD (post-traumatic stress disorder) and major depressive disorder in 2017.

He started writing his blog because he thought he was going crazy. Wanting to shout but not knowing how to do so. Not knowing where to direct it. So, this place, his blog is “Droplets of blood from an aching mind.”

To learn more about this author, visit the following links:

OFFICIAL WEBSITE
http://www.amedicsmind.com

A MEDIC’S MIND – THE PODCAST

GOODREADS

INSTAGRAM

MORE LINKS TO THE PODCAST:

A MEDIC’S MIND – THE PODCAST

SPOTIFY

ITUNES

GOOGLE PODCASTS

ANCHOR FM

VOICE FOR MENTAL HEALTH COLLECTIVE

ACADEMIA

AMAZON

CHAPTERS

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TO FIND OUT MORE ABOUT THE VOICE FOR MENTAL HEALTH COLLECTIVE, CHECK OUT THE FOLLOWING LINKS:

OFFICIAL WEBSITE

FACEBOOK
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INSTAGRAM
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TWITTER

MAYBE YOU SHOULD TALK TO SOMEONE – AUDIOBOOK REVIEW – A fantastic read whether you feel you need a psychiatrist or not

Title: MAYBE YOU SHOULD TALK TO SOMEONE

Subtitle: A THERAPIST, HER THERAPIST AND OUR LIVES REVEALED

Author: LORI GOTTLIEB

Narrator: BRITTANY PRESSLEY

Genre: NON-FICTION, MEMOIRS, HEALTH, MENTAL HEALTH, SELF-HELP

Length: 14 HOURS, 21 MINUTES

Publisher: Bolinda Publishing Pty Ltd

Type of Book: UNABRIDGED AUDIOBOOK

Release Date: MAY 9, 2019

Rating: 5 OUT OF 5 STARS ⭐⭐⭐⭐⭐

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Watch “Lori Gottlieb: Maybe You Should Talk to Someone: A Therapist, Her Therapist, and Our Lives Revealed” on YouTube CLICK HERE
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ABOUT THE BOOK:

“Ingenious, inspiring, tender, and funny. Lori Gottlieb bravely takes her readers on a guided tour into the self.”
Amy Dickinson, author of Strangers Tend to Tell Me Things

One day, Lori Gottlieb is a therapist who helps patients in her Los Angeles practice. The next, a crisis causes her world to come crashing down.

Enter Wendell, the quirky but seasoned therapist in
whose office she suddenly lands. With his balding head, cardigan, and khakis, he seems to have come
straight from Therapist Central Casting. Yet he will turn out to be anything but.

As Gottlieb explores the inner chambers of her patients’ lives—a self-absorbed Hollywood producer, a young newlywed diagnosed with a terminal illness, a senior citizen threatening to end her life
on her birthday if nothing gets better, and a twenty-something who can’t stop hooking up with the wrong guys—she finds that the questions they are struggling with are the very ones she is now bringing to Wendell.

With startling wisdom and humor, Gottlieb invites us into her world as both clinician and patient,
examining the truths and fictions we tell ourselves and others as we teeter on the tightrope between love
and desire, meaning and mortality, guilt and redemption, terror and courage, hope and change.

Maybe You Should Talk to Someone is revolutionary in its candor, offering a deeply personal yet universal tour of our hearts and minds and providing the rarest of gifts: a boldly revealing portrait of what it means to be human, and a disarmingly funny and illuminating account of our own mysterious lives and our power to transform them.
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MY REVIEW:

Listening to YOU SHOULD TALK TO SOMEONE by Lori Gottlieb on audiobook was the perfect way to experience her witty writing style.

Lori truly brings readers into her world. Not only does she allow us to be a ‘fly-on-the-wall’ of her therapy sessions with her patients, but she also does something that I don’t think has ever been done before. That is, that she not only invites the reader into the intimate details of her patient’s lives, she also welcomes the reader into her own world and her own therapy sessions. This allows the reader to feel a deep connection with the author, one that is unique in the realm of memoirs and biographies.

Speaking about her expertise, Lori Gottlieb says, “I believe that of all my credentials, my most significant is that I’m a card-carrying member of the human race.”

That might sound strange to some, but it is Author Lori Gottlieb’s gift of humanity/empathy, and human connection, as well as her education and study of psychology that allows readers to emotionally connect with her.

Lori navigates the story-telling aspect of her patient’s therapy sessions with respect and is still able to tell their stories in detail. She also admits that even though she is a therapist, she is also a patient who attends therapy herself.

In my opinion, the fact that Lori participates in therapy sessions with her own therapist means that she is better equipped to understand the experience from both a clinical and a personal perspective.

Narrator BRITTANY PRESSLEY is the perfect choice of narrator as she has a gift for making the reader feel as if she is talking directly to them. Her inflections are spot on, and she narrates the humorous portions of the stories with professionalism. Brittany’s experience (she has narrated over 100+ audiobooks) allows the reader/listener to relax and enjoy each tale.

My favorite quote from the book is:

“We can’t have change without loss, which is why so often people say they want change but nonetheless stay exactly the same.”

I purchased this audiobook at AUDIBLE.COM

I rate the narration as 5 OUT OF 5 STARS ⭐⭐⭐⭐⭐
I rate the story/content as 5 OUT OF 5 STARS ⭐⭐⭐⭐⭐
Overall, I rate this audiobook as 5 OUT OF 5 STARS ⭐⭐⭐⭐⭐

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ABOUT THE AUTHOR

Lori Gottlieb is a psychotherapist and New York Times bestselling author of “Maybe You Should Talk to Someone”, which is being adapted as a television series with Eva Longoria. In addition to her clinical practice, she writes The Atlantic’s weekly “Dear Therapist” advice column and contributes to The New York Times and many other publications.

A member of the Advisory Council for Bring Change 2 Mind and a contributing editor for the Atlantic, she has written hundreds of articles related to psychology and culture, many of which have become viral sensations.

She is a sought-after expert on relationships, parenting, and hot-button mental health topics in media such as The Today Show, Good Morning America, The CBS Early Show, CNN, The New York Times, and NPR’s “Fresh Air.”

To learn more about this author, visit the following links:

OFFICIAL WEBSITE
https://lorigottlieb.com/

AUDIBLE

GOODREADS

FACEBOOK

INSTAGRAM

TWITTER

AMAZON

CHAPTERS
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FAVORITE QUOTE:

Talking about doing therapy via Skype LORI GOTTLIEB says “It’s like doing therapy with a condom on.”

For film or television inquiries, please contact Michell Weiner (film) or OliviaBlaustein (television) at CAA.

For speaking or event inquiries, please contact Charles Yao at The Lavin Agency.

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ABOUT THE NARRATOR:

BRITTANY PRESSLEY is an Audiofile Earphones award winning narrator in NYC.

She has recorded over 100 titles and has received several nominations for American Library Association’s annual list of Amazing Audiobooks for Young Adults.

She is also an accomplished singer/songwriter and voice actress.

Her voice can be heard on national and international TV and radio commercials as well as several animated series and video games.

She is a proud graduate of Columbia University.

VOICE REPERTOIRE:
– Youthful
– fresh
– smart
– girl-next-door
– raspy
– light

AGE & GENDER REPERTOIRE:
– Female young adult
– Female adult
– Female teenager
– Child

Additional vocal abilities:
– Child voices
– British accent
– Russian accent
– Southern accent
– valley girl
– New York including: Long Island and Queens accent
– Britney Spears

EXPERIENCE:
– Working professional voice actor. – 100+ audiobooks.
– Awards including Audiofile Magazine Earphones award
– Commercials for Wendy’s, DSW, Speedo, Target.
– Cast member on multiple animated children’s television shows.

TRAINING:
– Commercial and voice over training @ Actors Connection, NYC
– Music Production techniques, @ Columbia University

EQUIPMENT:
My home studio is well equipped with:

– a Neumann TLM 102 microphone.

– Sound isolation booth
– Logic Pro

BRITTANY is also a very experienced singer, songwriter and session vocalist.

Click HERE to listen to Brittany narrate a section of THE CROWN by Kiera Cass

Want to listen to Brittany narrating a terrific middle-grade novel called THE LAND OF YESTERDAY by K.A. REYNOLDS? Click HERE.

To learn more about this Narrator, visit the following links:

OFFICIAL WEBSITE

AUDIBLE

iMDB

GOODREADS

VOICES.COM

LISTEN TO BRITTANY’S DEMO REEL
BY CLICKING HERE

VOICES 123.COM

INSTAGRAM

TWITTER

LINKEDIN

ESTORIES.COM

FANDOM

AMAZON

AUDIOBOOKS.COM

BOOKSONTAPE.COM

PENGUIN RANDOM HOUSE

FOWL LANGUAGE – WINGING IT: THE ART OF IMPERFECT PARENTING by Award Winning Cartoonist Brian Gordon will have you laughing out loud. 5+ Stars

FACEBOOK – PUBLISHER

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Title: FOWL LANGUAGE – WINGING IT

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Subtitle: THE ART OF IMPERFECT PARENTING

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Author: BRIAN GORDON

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Genre: HUMOR, COMICS AND GRAPHIC NOVELS

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Length: 162 PAGES

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Publisher: ANDREWS McMEEL PUBLISHING
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Received From: NETGALLEY
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Release Date: OCTOBER 22, 2019

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ISBN: 9781524851835

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Price: $14.99 USD

Rating: 5+ OUT OF 5 STARS ⭐⭐⭐⭐⭐

DESCRIPTION:

The perfect gift for baby showers and for those already in the throes of parenting, Fowl Language: Winging It is here to let you know that you’re not alone. Parenting is hard and often gross. Laughing about it helps.

The world’s finest parenting cartoon featuring ducks presents a comprehensive view of the early parenting years in all of their maddening cuteness and sanity-depriving chaos. In addition to dozens of previously unpublished cartoons, Fowl Language: Winging It is organized into 12 thematic chapters—including “Babies: Oh Dear God, What Have We Done?”; “Siblings: Best Frenemies Forever”; and “Sleep: Everybody Needs It, Nobody’s Gettin’ It”—each of which begins with a hilarious, illustrated 500-word essay.

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MY REVIEW:

Parenting is hard. Ask anyone who has ever raised kids, or who is currently raising them, they’ll tell you – it is damn hard. Anyone who disagrees is probably childless, delusional, or they are lying.

Parenting is a full-contact sport where the parent juggles multiple roles. Not only are they the players, but they are also the coach, the referee and the spectators. Also, since the kids keep aging, the rules are constantly changing. Sound like fun?

I swear most parenting books were written with the singular goal of making parents feel completely inept and like they are total failures. That is why the world NEEDS Brian Gordon and his FOWL LANGUAGE COMICS.

Laughter is the best medicine. (Think Robin Williams in the movie Patch Adams … If you don’t know what I am talking about, you need to watch the movie ASAP.) It has been scientifically proven that laughing reduces stress levels which is where FOWL LANGUAGE: WINGING IT: THE ART OF IMPERFECT PARENTING by Brian Gordon comes in.

The characters he draws might be ducks, but each comic is based on real world situations. Situations that most parents can relate to. It is this relatability that will have readers literally laughing out loud.

This book is the perfect gift for any occasion, from baby showers to Christmas and Birthday gifts all the way to hostess gifts, this book is perfect. Also, if you are lucky enough to have still living grandparents, you have to buy them a copy of this book. If my Dad were still alive (Cancer SUCKS) he would love this book. Oh, and get a copy for yourself. Put it on your coffee table when other parents are coming over. It is a great conversation starter.

I rate FOWL LANGUAGE: WINGING IT: THE ART OF IMPERFECT PARENTING by Brian Gordon as more than 5 OUT OF 5 STARS ⭐⭐⭐⭐⭐⭐⭐⭐

*** Thank you to NetGalley for providing me with a free copy of this book.***

ABOUT THE AUTHOR/ILLUSTRATOR:

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A million years ago, Brian Gordon spent his time staying out late, hitting the clubs, and eating at fancy restaurants.

And then suddenly … CHILDREN. While he loved being a dad more than anything else, he also noticed that at times, parenting can be a total crap-fest.

In the summer of 2013, Brian began drawing Fowl Language as a fun (and often profane) way to vent his frustrations. After getting laid off from his job as a greeting card artist, he decided to pursue the comic full-time. His work quickly became an Internet viral sensation, and is shared regularly by millions of people all over the world.

To learn more about this author/illustrator visit the following links:

OFFICIAL WEBSITE
https://www.fowllanguagecomics.com

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FOWL LANGUAGE STORE
https://www.fowllanguagestore.com

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GOODREADS
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INSTAGRAM
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INSTAGRAM – PUBLISHER

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TWITTER – FOWL COMICS
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TWITTER – PUBLISHER

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FACEBOOK – FOWL LANGUAGE
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FACEBOOK – PUBLISHER

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LINKEDIN
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TUMBLR
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PATREON
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AMAZON
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CHAPTERS
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BARNES AND NOBLE

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Fowl Language shirt

RESURRECTION LILY: A Memoir of the BRCA Gene, Hereditary Cancer and Lifesaving Whispers From the Grandmother I Never Knew by AMY BIER SHAINMAN is a heart wrenching read, but THIS BOOK MIGHT JUST SAVE YOUR LIFE

Title: RESURRECTION LILY

Subtitle: THE BRCA GENE, HEREDITARY CANCER & LIFESAVING WHISPERS FROM THE GRANDMOTHER I NEVER KNEW – A MEMOIR

Author: AMY BYER SHAINMAN

Genre: MEMOIRS AND BIOGRAPHIES, NON-FICTION, HEALTH AND WELLNESS, MEDICAL CARE

Length: 291 PAGES

Publisher: ARCHWAY PUBLISHING

Received From: THE AUTHOR

Release Date: DECEMBER 3, 2018

ISBN: 978-1-4808-6706-2

Price: $19.99 USD

Rating: 5 OUT OF 5 STARS ⭐⭐⭐⭐⭐

DESCRIPTION:

Resurrection Lily shares a gene.story of inheritance and intuition, of what can surface in the body and the spirit when linked by DNA. As Amy Byer Shainman discovers she has inherited a BRCA gene mutation that puts her at high risk of developing certain cancers, she struggles to come to terms with preventively removing her breasts when she does not have a breast cancer diagnosis. Through her experience making decisions about her health, Amy becomes invigorated with purpose and establishes herself as a leading advocate for those with BRCA and other hereditary cancer syndromes, tirelessly working to educate others facing the same daunting reality.

Painting a timely and moving portrait of what it feels like to carry a BRCA gene mutation, Resurrection Lily provides firsthand insight into the patient experience. Weaved throughout Amy’s open and vulnerable story is the expertise of her doctors, education from top medical experts in cancer genetics, and whispered lifesaving guidance from her grandmother Lillian.

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MY REVIEW:

Before reading this memoir I had some small knowledge regarding the BRCA gene. If I had been asked before reading this book whether I felt I was fairly well informed on the subject of breast cancer and the BRCA Gene, I would have confidently said that I was. Now, upon completion of Amy Byer Shainman’s memoir, I know I was mistaken.

The reason I am including the above fact is that, I think many people will feel that they already have enough knowledge on Breast Cancer and on the BRCA Gene. I urge those of you who are thinking along those lines, to trust me and to pick up a copy of this memoir (and one for each of your friends and family members.) I guarantee that if you do, you will be grateful that you did. IT MIGHT EVEN SAVE YOUR LIFE – OR THE LIFE OF SOMEONE CLOSE TO YOU.

I do not want to misrepresent this book. It is NOT a dry, medical text full of facts, figures and survival rates. Instead, first and foremost it is the story of Amy and her family. It is a memoir, but is not JUST a memoir. Amy’s story is an interesting one and what struck me the most was the utter normality of her life before her unasked for trip into the world of Breast Cancer and gene studies. She could have been anyone. In fact, she could have been you. She could have been me.

When Amy’s sister is diagnosed with cancer, it changes Amy’s whole life. Then, her husband’s co-worker and close friend to both him and to Amy, is diagnosed with breast cancer as well.

Amy began looking into these cancers and discovered that there are some genetic components to breast cancer and especially to having the BRCA gene.

This book also contains quotes by specialists as well as short anecdotes written by other people who have had their own personal experiences with the BRCA Gene.

Because Amy is a “regular” person and not a doctor, this story, as well as the information contained within, is written in easy to understand prose and is NOT filled with technical jargon.

Amy does a fabulous job of conveying the conflicting emotions she experienced while worrying about her sister, worrying about her friend, all while making difficult decisions regarding her own medical issues. Readers will find themselves invested in the decisions. I even cried a few times.

Maya Angelou once said “When women take care of their health they become their own best friend.” I firmly believe this and reading this memoir has served to strengthen that belief even further.”

This book is all about Maya’s message which has become Amy’s mission in life. She has become the BRCA RESPONDER and is dedicated to helping other BRCA positive people to navigate through the health care system.

Simply put, this book might save your life, and because of that fact, to me, it is a “No-brainer.” You should not only want to read this book, you NEED to read this book.

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ABOUT THE AUTHOR:

(Photographer: Debby Gans Photography)

Amy Byer Shainman, also known as the BRCA Responder, is a passionate patient advocate for those with BRCA and other hereditary cancer syndromes. While Angelina Jolie inherited her BRCA1 gene mutation from her mother, Amy inherited her BRCA1 gene mutation from her father. In 2010, Amy had two prophylactic surgeries to reduce her cancer risk drastically; a nipple sparing, skin-sparing mastectomy with reconstruction and oophorectomy with a hysterectomy.

Amy Byer Shainman, also known as BRCA Responder, is a patient advocate who provides support and education surrounding BRCA and other hereditary cancer syndromes. She’s the executive producer of the award-winning documentary “Pink & Blue: Colors of Hereditary Cancer” and the author of the award-winning medical memoir “Resurrection Lily: The BRCA Gene, Hereditary Cancer & Lifesaving Whispers from the Grandmother I Never Knew.” As a BRCA1 gene mutation carrier, Shainman has been featured in Cure Magazine, The Jewish Journal, and The Palm Beach Post, as well as numerous live and taped television and radio segments nationwide. As a digital ambassador for the National Society of Genetic Counselors gene pool, she is considered one of fifteen influencers who have unique perspectives and knowledge in the fields of genetics and genetic counseling. Her articles have been published in The American Journal of Managed Care, Jupiter Magazine, and Oncology Nursing News.

To learn more about this author, visit the following links:

OFFICIAL WEBSITE
http://www.brcaresponder.com

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GOODREADS
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FACEBOOK

INSTAGRAM

TWITTER

PINTEREST

LINKEDIN

GOOGLE PLAY BOOKS

AMAZON

CHAPTERS

PATIENT’S STORIES PODCAST

WON AWARD

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SOME OF THE MANY RESOURCES SPECIFICALLY MENTIONED IN THIS BOOK INCLUDE:

– A Documentary DVD from PBS called IN THE FAMILY (not the Archie Bunker sitcom)

The BE BRIGHT PINK Website
http://www.bebrightpink.com

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The FACING OUR RISK EMPOWERED Website
http://www.facingourrisk.org

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DR. JOHN A.P. RIMMER, FACS, FRCS, BREAST SURGEON

DR. DAVID A. LICKSTEIN, MD, FACS, DIPLOMATE, AMERICAN BOARD OF PLASTIC SURGERY

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CENTER FOR BRCA RESEARCH HEREDITARY CANCER CLINIC

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#BRCA #hereditarycancer #previvor #ovariancancer #breastsurgeon #cancerprevention #plasticsurgery #advocacy #womenfilmmakers #plasticsurgeon #brcasisterhood #breastcancer #mastectomy #menshealth #womenshealth #resurrectionlily #geneCSM #NetGalley #bookreview #memoir #biography #cancer #genetics #genetictesting #book #bookstagram #bookstagrammer #bibliophile #bookblog #bookreviewer #tbr #mustread #thefinchbook
#Amiesbookreviews #cancerbook #5Stars #5Star #5StarBook #cancerawareness #facingourrisk #FORCE #facingourriskempowered
#licksteinplasticsurgery #BRCAResponder #AmyByerShainman

ONE NURSE UNIVERSE by Susan Turnage, R.N. is a memoir written as a collection of tales of her 30 years as a nurse. Heart-warming, Heart-Breaking and Absolutely Hilarious – An awesome mix of stories you won’t want to miss

Title:ONE NURSE UNIVERSE

Subtitle: RECOLLECTIONS FROM THE BEDSIDE

Author: SUSAN TURNAGE, R.N.

Genre: NON-FICTION, BIOGRAPHIES AND MEMOIRS, HEALTH CARE

Length: 281 PAGES

Publisher: DOG EAR PUBLISHING

Received From: NETGALLEY

Release Date: JUNE 10, 2019

ISBN: 9781457567421

Rating: 4.5 OUT OF 5 STARS ⭐⭐⭐⭐⭐

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DESCRIPTION:

My occupational memoir reveals one nurse’s bedside observations on where nurses come from, how we are educated, treated in the workplace and how we learn to do what can never be taught in a curriculum. When a patient vomits explosively onto your chest how you may unexpectedly vomit right back. How to explain to a deaf patient where a suppository goes while an audience of staff and visitors listen in from the hallway. How to collect your thoughts and make a plan when you arrive for a home care visit to find your elderly confused patient has ingested a full bottle of liquid laxative and left evidence of those results all over the walls, floor and Barco lounger in the home. It is where medical science meets nursing artistry. Where technology meets humanity. Where hearts open and wounds heal. Through selected vignettes, I recognize modern nurses’ courage to lean into discomfort and hard emotions. I acknowledge the power they hold in their healing hands and throw forward a lifeline of hope to renew their faith and joy in their vocation. And to my many non-nurse readers, come experience a nurse’s day; what we see, feel, hear and touch. Have a peek behind the bedside curtain.

MY REVIEW:

ONE NURSE UNIVERSE is a collection of anecdotes written by a retired registered nurse. These short stories run the gamut from heart wrenching and heart breaking to hilarious.

For a debut author to so skillfully write stories from her own life, it takes a knack for storytelling as well as an innate knowledge of which details need to be included and which can be left out.

I very much enjoyed the stories Nurse Susan has included in this memoir, and, as was inferred by the author, she no doubt has many more tales to tell. I hope this means that she is already working on her next collection of true stories. If so, I know I will definitely buy a copy.

I admit to being a bit thrown off by the cover, but once I discovered it was a picture drawn many years ago by her son (at age six) it made perfect sense as to why she chose to use that illustration for her book cover. Unfortunately, that might not be apparent to potential readers and I worry it might put them off. If so, they will miss out on a terrific anthology.

I rate ONE NURSE UNIVERSE as 4.5 OUT OF 5 STARS ⭐⭐⭐⭐⭐

****Thank you to #NetGalley for providing me with a free copy of this book****

ABOUT THE AUTHOR:

Susan Turnage is an RN, E-RYT200, RYT500, and a CYN- Certified YogaNurse®. She has clinical nursing experience in pediatric oncology, pediatric head injury, corrections, home health and case management.

She teaches weekly healing mat and chair yoga classes in her local communities of New Kent and Charles City, Virginia, to a multiethnic population of all abilities.

Susan also works as an art conservation technician, is a volunteer for the Virginia Institute of Marine Sciences as a game fish tagger, is an instructor in a yoga teacher training program, creates one of a kind, themed jewelry, is a driftwood sculptor and a writer.

Her husband is an artist who creates porcelain pottery and is also a gardening guru and fishing enthusiast.

She has 2 treasured sons and an elderly German Shepherd.

To learn more about this author, visit the following links:

OFFICIAL WEBSITE
http://susanturnagebooks.com

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LINKEDIN
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GOODREADS
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FACEBOOK – AUTHOR
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FACEBOOK – PUBLISHER .

INSTAGRAM
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TWITTER – PUBLISHER
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AMAZON
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CHAPTERS
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PUBLISHER’S WEBSITE
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YOGA NURSE ACADEMY

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PAIN-LESS : LIVING WITH PAIN, FINDING JOY by Anne Welsh BOOK REVIEW and MORE AVAILABLE NOW

Title: PAIN-LESS

Subtitle: LIVING WITH PAIN, FINDING JOY

Author: ANNE WELSH

Genre: NON-FICTION, BIOGRAPHIES AND MEMOIRS, CHRONIC PAIN, MEDICAL, MENTAL HEALTH

Length: 194 PAGES

Publisher: CAMERON PUBLICITY

Received From: NETGALLEY

Release Date: JUNE 19, 2019

ISBN: 9781781328750

Rating: 4 OUT OF 5 STARS ⭐⭐⭐⭐

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DESCRIPTION:

Both a personal story of living with chronic pain and a positive guide for anyone who suffers regular physical pain and related stress.

Anne Welsh has lived with chronic pain all her life. As a sufferer of sickle cell disease, she is no stranger to the everyday struggles and mental anguish that can come from living with an invisible illness.

Like so many who suffer from painful and life-changing conditions, Anne has battled with depression: times when she believed that she could never lead a normal and happy life. But thanks to the support of many people along the way, she has discovered that life can still be wonderful, no matter your challenges.

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Go to AFRICAN GLITZ website to read about the PAIN-LESS Book Launch.
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Click HERE to read about Anne Welsh’s press junket on AFRICAN GLITZ.

Photos By: @danielsync

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MY REVIEW:

Do you know anyone who suffers with Chronic Pain?

If your answer is no, then you are extremely lucky.

I have been living with debilitating and demoralizing pain since 2009. It has affected and still affects all aspects of my life.

“I am often asked what sickle cell pain feels like and for me there are no words to describe it, but if I must try, all I can say is that it is like someone using a hammer to knock on your bones over and over again.”

Anne’s pain is caused by Sickle Cell Disease and she has been dealing with it’s effects her entire life. I admit to having heard of this disease before reading this book, but I knew next to nothing about it’s symptoms.

After reading Anne Welsh’s memoir, I feel that I am much better informed about Sickle Cell Disease and it’s details.

This book contains terrific tips and ideas of how to live with a chronic illness, as well as wonderful ideas for the families and friends of those of us who have an invisible illness as to how they can assist and support us. These ideas can be applied to any chronic illness, and are not specific to Sickle Cell Disease.

Anne’s upbeat attitude and her determination to live life as fully as possible despite her terrible and debilitating condition is inspiring and offers hope to the rest of us. The following quote really spoke to me.

“Finally I had come to understand that to become a better me, I had to accept help as well as not be afraid to ask for it. This is a realisation that all of us who live with a chronic illness need to come to. We cannot do it on our own, so accept the help offered, and it will make an enormous difference to your life.”

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I rate this book as 4 OUT OF 5 STARS ⭐⭐⭐⭐

***Thank you to #NetGalley and the #publisher for providing me with a free copy of this book.***
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Watch “Anne Welsh – Living with Sickle Cell (Part One)” on YouTube:

https://youtu.be/EdLOlEUeVq4
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ABOUT THE AUTHOR:

Anne Welsh is an author, entrepreneur and philanthropist. She was born in Nigeria and emigrated to the United Kingdom when she was very young. She was diagnosed with sickle cell anaemia at the age of four, and, after returning to live in her homeland while still a child, faced many of the problems that come with living with a life-threatening disease in a developing country.

Since returning to the UK in her late teens, and with the support of her family, Anne has created her own path to happiness through her academic studies and her career. After completing a degree in Accounting and Finance, Anne went on to achieve an MA in International Banking before starting her career in investment banking. She now runs her own consultancy firm, specialising in business development in Africa and beyond.

Anne is a tireless advocate for sickle cell disease and her memoir, Pain-less, was borne of her determination to raise awareness about the impact invisible diseases such as sickle cell can have on individuals, and also to give support and advice to other sufferers and their families. Having frequently battled with depression, Anne is all too aware of the difficulties faced by sufferers of life-threatening illnesses. By writing this book, she hopes to help others improve their mental and physical wellbeing and enable them to achieve a joyful and fulfilling life.

Anne is married with two children – something she once thought may never be possible – and two stepchildren and lives in London.

To learn more about this author, visit the following links:

OFFICIAL WEBSITE

GOODREADS

FACEBOOKANNE WELSH
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FACEBOOK – CAMERON PUBLICITY
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FACEBOOK – SILVERWOOD BOOKS
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INSTAGRAM – AUTHOR
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INSTAGRAM – CAMERON PUBLICITY
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INSTAGRAM – SILVERWOOD BOOKS
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INSTAGRAM – PAINLESS OFFICIAL BOOK ACCOUNT
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TWITTER
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TWITTER – SILVERWOOD BOOKS
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YOUTUBE
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AMAZON
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CHAPTERS
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KOBO

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Talking about this book? Be sure to tag it using #PainLess #NetGalley
#ChronicPain #Fibromyalgia #CFS #ChronicFatigue #constantpain #pain #sicklecell #sicklecelldisease

SOME EARLY REVIEWS/ADVANCE PRAISE

“A powerful account of Anne Welsh’s own journey with her ‘invisible illness’.”

– Dr Tedros AdhanomGhebreyesus, Director-General of the World Health Organization

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“An honest and insightful account into a world unknown to so many.”

– The Most Revd and Rt Hon. Dr John Sentamu, Archbishop of York

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“Any help for people to learn how to avoid pain triggers and handle their pain better is to be welcomed, as in this book based on the life and experience of Anne Welsh.”

– Professor Dame Sally C Davies, Chief Medical Officer UK

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ABOUT SICKLE CELL DISEASE:

– In 2008, the UN established WORLD SICKLE CELL DAY. It falls on June 19th each year and is marked with various events worldwide.

– In 2018, the National Institute of Health launched it’s CURE SICKLE CELL INITIATIVE.

– Listen to THE SICKLE CELL PODCAST

– For more information about this disease visit the website The Sickle Cell Disease Association of America.

Download a free eBook about Sickle Cell Pain in the Emergency Department: A Guide to Improving Care.

Download this free children’s book about Sickle Cell Disease, then go Download the free game app

TALES FROM BEHIND THE WINDOW by Author/Artist EDANUR KUNTMAN is a feast for the eyes and the Soul – AVAILABLE NOW!!!

Title: TALES FROM BEHIND THE WINDOW

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Author/Illustrator: EDANUR KUNTMAN
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Genre: BASED ON A TRUE STORY, GRAPHIC NOVEL, FICTION, WOMEN’S ISSUES, HISTORY

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Length: 168 PAGES

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Publisher: EUROPE COMICS
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Received From: NETGALLEY
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Release Date: AUGUST 14, 2019

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ISBN: 9791032809136

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Price: $10.99 USD (eBook)

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Rating: 4 OUT OF 5 STARS ⭐⭐⭐⭐

DESCRIPTION:

Tales from behind the Window” is based on memories of an Anatolian grandmother and women she knew who suffered from male dominance over their lives. Writer and illustrator Edanur Kuntman seeks a unique way to express and give voice to women in her grandmother’s memories and in our reality who were not able to reconcile their inner emotional depth with their rural worlds in Northern Turkey. One long and two short stories included in this book revolve around terrifying emotional burdens such as forced marriages, being betrayed by patriarchs, and lost love, which have haunted and still haunt many in rural Anatolia.

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MY REVIEW:

This graphic novel tells the true stories of three women from the author’s family. Although this book is categorized as fiction, it is based on interviews have the author’s grandmother.

This type of book is important because if we remember the past and the many injustices faced by women, we give them a voice. Those voices remind us of how far society has come and how far we still have to go.

Using the medium of a graphic novel, the author is able to convey emotions much more powerfully than if she had only described them in words.

The use of darker colors and austere illustrations, readers easily see the difference between the vibrant colors of the female illustrations and the grim male based illustrations. This is brilliantly rendered.

I rate TALES FROM BEHIND THE WINDOW as 4 OUT OF 5 STARS ⭐⭐⭐⭐

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*Thank you to #NetGalley and #EuropeComics for providing me with a free copy of this book.*

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***** THE AUTHOR ALSO CREATED an Animated TV Spot created for Down Turkey together with Koff Animation. The goal was to remind people that Down Syndrome is not a disease and people diagnosed with Down Syndrome are capable of working just like the rest of the society. In this project she worked as a character artist and animator.

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ABOUT THE AUTHOR:

Edanur Kuntman is an up-and-coming Turkish artist who has been working in animation, illustration, and game design, as well as taking on publishing projects, and has a degree in political science.

She is currently based in Brooklyn, New York, as a visual and game designer.

She is the author of the graphic novel Tales From Behind The Window (Akan Ajans/Marmara Cizgi; Europe Comics in English).

To learn more about this author, visit the following links:

OFFICIAL WEBSITE
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LINKEDIN
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BĒHANCE
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GOODREADS
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INSTAGRAM
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TWITTER
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COMIXOLOGY
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AMAZON
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GOOGLE BOOKS
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CHAPTERS
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PUBLISHER’S WEBSITE
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ABOUT THE PUBLISHER:

Europe Comics is a joint digital initiative run by 13 European comics industry players from 8 European countries. Its main purpose is the creation of a pan-European catalog of award-winning graphic novels from across the continent, published digitally in English and available through major retailers and library networks. Europe Comics also works towards the promotion of European authors and the creation of a European comics online directory, meant for both comics readers and professionals.

To find out more about Europe Comics, Visit the following links:

OFFICIAL WEBSITE
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GOODREADS
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TWITTER
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FACEBOOK
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PINTEREST

More Illustrations By The Super-Talented Edanur Kuntman

DIAGNOSIS by LISA SANDERS is a 5 Star Read and will soon be a series on Netflix

Title: DIAGNOSIS

Subtitle: SOLVING THE MOST BAFFLING MEDICAL MYSTERIES

Author: LISA SANDERS, M.D.

Genre: NON-FICTION, MEMOIRS, MEDICAL, HEALTH AND WELLNESS

Length: 320 PAGES

Publisher: CROWN PUBLISHING

Received From: NETGALLEY

Release Date: AUGUST 13, 2019

ISBN: 9780593136638

Price: $17.00 USD

Rating: 5 OUT OF 5 STARS ⭐⭐⭐⭐⭐

DESCRIPTION:

As a Yale School of Medicine physician, the New York Times bestselling author of Every Patient Tells a Story, and an inspiration and adviser for the hit Fox TV drama House, M.D., Lisa Sanders has seen it all. And yet she is often confounded by the cases she describes in her column: unexpected collections of symptoms that she and other physicians struggle to diagnose.

A twenty-eight-year-old man, vacationing in the Bahamas for his birthday, tries some barracuda for dinner. Hours later, he collapses on the dance floor with crippling stomach pains. A middle-aged woman returns to her doctor, after visiting two days earlier with a mild rash on the back of her hands. Now the rash has turned purple and has spread across her entire body in whiplike streaks. A young elephant trainer in a traveling circus, once head-butted by a rogue zebra, is suddenly beset with splitting headaches, as if someone were “slamming a door inside his head.”

In each of these cases, the path to diagnosis—and treatment—is winding, sometimes frustratingly unclear. Dr. Sanders shows how making the right diagnosis requires expertise, painstaking procedure, and sometimes a little luck. Intricate, gripping, and full of twists and turns, Diagnosis puts readers in the doctor’s place. It lets them see what doctors see, feel the uncertainty they feel—and experience the thrill when the puzzle is finally solved.

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MY REVIEW:

Author Dr. Lisa Sanders is the doctor whom the television show HOUSE was based on. She is well-known for her diagnostic prowess as well as for her column in the New York Times. Now, Netflix is filming a series based on her case files. I am very much looking forward to watching this new series. I LOVED watching HOUSE and was sad when the television series ended.

DIAGNOSIS is a fascinating and informative read, as well as being chock-full of information that most doctors (and patients) are unaware of. In my opinion, everyone, especially doctors need to own a copy of this book.

I am well aware of the theory known as “Occam’s Razor” which is a principle from philosophy that states that the simplest explanation is usually correct. However, sometimes that theory does not apply. In medicine sometimes a zebra masquerades as a horse and because the disease is so rare, it is unknown to the doctor and/or because of it’s rarity, it is dismissed as a possibility.

If you have any interest in medical mysteries this book should be at the top of your ‘TBR (TO BE READ)’ List. Once I started reading, I was unable to put it down.

Not only does the author do an exceptional job of describing the symptoms each patient is experiencing, she also gives a brief description of the person’s home and work life which provides a perfect balance between the technical and the personal aspects of each case.

Dr. Lisa Sanders also provides the reader with an update as to how each patient is faring at the present time. This is something that I find many medical books leave out. It is as if many doctors see only the medical mystery and view the patient as callously as they would view a lab rat; ignoring them once the mystery is solved and leaving the follow-up to others. Lisa Sanders does NOT do this. In fact, several of the cases were diagnosed years earlier and yet she has taken the time to call each patient and ask after their current help.

This book is worthy of more than just 5 Stars, however, since five stars is the highest rating I can bestow upon a book, 5 STARS will have to suffice. ⭐⭐⭐⭐⭐

The world is lucky to have diagnosticians such as Dr. Lisa Sanders and she has saved multiple lives and livelihoods. She is an inspiration to women everywhere.

*Thank you to NetGalley for providing me with a free copy of this book.*

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ABOUT THE AUTHOR:

Dr. Lisa Sanders is a clinician educator in the Primary Care Internal Medicine Residency Program. In addition to her work as a physician and teacher, she writes the popular Diagnosis column for the New York Times Magazine and the Think Like a Doctor column featured in the New York Times blog, The Well. Her column was the inspiration for the Fox program House MD (2004-2012) and she served as a consultant to the show. In 2010 published a book titled Every Patient Tells a Story: Medical Mysteries and the Art of Diagnosis. Currently she is collaborating with the New York Times on an 8 hour documentary series on the process of diagnosis. It will air on Netflix in the summer of 2019.

Sanders’ path to medicine was anything but traditional. As an undergraduate at the College of William and Mary, she majored in English, wrote for The Flat Hat, the college paper, and served pints of ale at Chownings Tavern in Colonial Williamsburg. After graduation she took a job with ABC at Good Morning America. Less than 10 years later, while working for CBS News, she won an Emmy Award for Outstanding Coverage of a Breaking News Story for coverage of Hurricane Hugo as it slammed into her hometown of Charleston, S.C. But by then, Sanders said, she was ready to move on professionally and decided that of all the subjects she covered as a journalist, medicine intrigued her most. After two years at Columbia University’s Post-Baccalaureate Premedical Program, Sanders was accepted to the Yale School of Medicine “as part of the 10 percent of the class they reserve for weirdos,” she said. In addition to her time in the hospital, Sanders is currently researching clinical decision making and the way diagnostic decisions and errors are made. She has published two books previously — “The Perfect Fit Diet: Combine What Science Knows About Weight Loss With What You Know About Yourself” in 2004 and “The Perfect Fit Diet: How to Lose Weight, Keep it Off and Still Eat the Foods You Love” in 2005.

To learn more about this author, visit the following links:

OFFICIAL WEBSITE

YALE SCHOOL OF MEDICINE

GOODREADS

NEW YORK TIMES – DIAGNOSIS COLUMN

FACEBOOK

TWITTER

AMAZON

CHAPTERS

PUBLISHER’S WEBSITE

#Diagnosis #NetGalley #Review #Reviewathon #bookreview #medical #medicalmysteries #rarediseases #doctor #Doctors #health #healthandwellness #bookblog #book #2019 #2019release #2019booklovers #2019bookrelease #lisasanders #reallifedrhouse #realhealthmysteries #raredisease #whattolookfor #patient